We at Loveli Inc. are aggressively involved in a fundraising and awareness campaign for Epidermolysis Bullosa (EB).
Unlike cancer or other diseases, most people never know anyone that is affected by this disease. The most important thing we can raise is awareness, although the money is needed too.
What is Epidermolysis Bullosa (EB)?
Epidermolysis Bullosa is a rare genetic disease characterized by the presence of extremely fragile skin and recurrent blister formation. EB is an inherited genetic disease, not a contagious one. Children are born with EB because of a mistake in one of the genes that make skin protein. EB cannot be transmitted/developed due to exposure. Even the slight slightest touch or friction can cause the skin to break resulting in painful blisters and open wounds. Because EB affects people from all walks of life in many different countries, there may be a Debra-affiliated support center near you. Because of the rare nature of this disease, a location may exist that even your local doctor may not know about. We’re here to help. Please contact our office at 212.868.1573.
Find a Debra Affiliate in Your Country
How much of donated funds go to support Debra’s programs and services?
100% of ALL funds raised in SL will be transferred directly to debra.org. Please visit this website if you want to know more.
To vote on a contest board, come by Loveli, we’d love to see you here. Also at the site are tp boards for our date auction and gown and item auction.
Worth mentioning are a couple of other ways you can help.
1) Tell your friends and family about EB
2) Donate in one of the Debra boxes at the photo contest site
3) Send the following notecard to your groups and lists. It has FAQs about EB
Thank you for reading and your consideration to think about how you can join with us and end this year off by making a huge impact on some people who often times feel forgotten. EB effects people in every country, from both sexes and every racial or ethnic group. It is however very rarely mentioned in the mainstream. I think we have an opportunity here to make a step in turning that around.
Loveli Inc. Mgmt
Some of the items for Auction: Lady Thera Gowns
Please Come and Support this Charity Event. Thank You So Much.